This is the inaugural Perinatal Conference for Share of Lancaster. This conference featured invited members of the community who are leaders in their respective fields of stillbirth, pregnancy loss and trauma and grief. The first half of the day had a medical focus with medical providers who will speak to the current state of knowledge and address future directions of this field. The second half of the conference concentrated on the psychosocial aspects of this topic featuring our dedicated prac...

Intended for researchers in the social and behavioral sciences, as well as IRB members and staff, this course provides an overview of ethical principles and federal regulations that govern research in these fields. Learners will review the rationale for regulating social and behavioral research, as well as landmark studies that have raised ethical questions. Other topics include:Social and behavioral science under the Common Rule.Ethics and regulation of ethnographic studies and studies that inv...

Intended for both researchers and those involved in research oversight, this course provides an overview of ethical principles relevant to the design of trials involving human subjects. Learners will review foundational study designs and design tools with a focus on ethical and regulatory considerations.Topics include:Differentiating between research and quality improvement.Observational and interventional designs.Randomization, blinding, and placebos.First-in-Human, or Phase I, trials.Cluster r...

Seriously ill patients and family members have defined the importance of various elements related to quality End-of-Life Care. The most important elements are trust in the treating physician, avoidance of unwanted life support, sensitive effective communication, continuity of care and life completion.  Generally speaking, people who are dying need care in four areas: physical comfort, mental and emotional needs, spiritual needs, and practical tasks. Of course, the family of the dying person...