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Genes, Choices, and Ethics: Navigating the Moral Dilemmas in Genetic Counseling


ONLINECMENOCMEGenetic Counselor

  • Overview
  • Register
  • Online Content & Tests


Date & Location
Wednesday, March 26, 2025, 8:30 AM - Sunday, November 1, 2026, 8:30 AM

Course Overview

This nineteen-part series is designed to provide bioethics education for genetic counselors, covering foundational principles, legal perspectives, and considerations across various specialties and life stages.


Target Audience
Specialties - CLINICAL BIOCHEMICAL GENETICS, CLINICAL CYTOGENETICS AND GENOMICS, CLINICAL GENETICS AND GENOMICS (MD), CLINICAL MOLECULAR GENETICS AND GENOMICS, GENETICS, LABORATORY GENETICS AND GENOMICS, MEDICAL GENETICS AND GENOMICS - Medical Biochemical Genetics, MEDICAL GENETICS AND GENOMICS - Molecular Genetic Pathology
Professions - Genetic Counselors

Registration

The first 250 Genetic Counselors who complete all modules and evaluations will have their NSGC credit fees covered. Once your completion of the modules is confirmed, you will receive a link to complete the online evaluations for each module. Individuals will not be eligible for NSGC CEU credits until all modules and course evaluations are complete.

CEU submissions to the NSGC for Genetic Counselors will be take place quarterly on April 1, 2025, July 1, 2025, October 1, 2025 and at the conclusion of this program.

Participants must complete all of the following steps in order to earn NSGC credits.

Please do not pause or attempt to watch any video from a previous point; the system will not tally your time spent watching it.

Completing the Modules

  1. Register for the activity

  2. Click the Attendance Attestation button to indicate that you will confirm your participation

  3. Click the Attendance Instructions button for important directions on registering your participation

  4. Click the Attendance Verification Attestation button to verify you registered your participation

  5. Click the Pre-Test button for Module #1, answer the questions, and submit your test

  6. Once the Launch Video button activates, you can watch Module #1

  7. Once Module #1 is complete, click the Post-Test button, answer the questions, and submit your test. A button to view your Test Results will be available

  8. Select the Launch Evaluation button for Module #1 Evaluation and click the link to complete the evaluation

  9. Once you submit your evaluation responses, you will be directed to go back to CloudCME to start the next Module

  10. Repeat these steps until all Modules have been viewed and all Evaluations have been completed.

  11. Once all modules have been viewed and evaluations have been completed, click the Post Activity Attestation and submit your answers.

  12. You will then be directed to the Overall Activity Evaluation and submit your responses

  13. Once the Overall Activity Evaluation is complete, the Download Certificate button will appear, allowing you to download and save your certificate of completion.

  14. Send a copy of your certificate as a PDF to Lisa Weitzman at [email protected] with the following file name LastName_FirstName_NSGC ID_GCE (example Smith_Chris_NSCG 12345_GCE.pdf)

  15. Allow six weeks from completion for your credits to show on your NSGC profile.

Download of Instructions


Accreditation

The National Society of Genetic Counselors (NSGC) has authorized The University of Pennsylvania, funded by the Warren Alpert Foundation  to offer up to 10 Category 1 contact hours for the activity Genes, Choices, and Ethics: Navigating the Moral Dilemmas in Genetic Counseling. The American Board of Genetic Counseling (ABGC) will accept CEUs earned at this program for the purposes of genetic counselor recertification.


Credits
General Attendance (10.00 hours), Non-CME (10.00 hours)
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Mitigation of Relevant Financial Relationships


Penn Medicine adheres to the ACCME’s Standards for Integrity and Independence in Accredited Continuing Education. Any individuals in a position to control the content of a CE activity, including faculty, planners, reviewers or others are required to disclose all relevant financial relationships with ineligible entities (commercial interests). All relevant conflicts of interest have been mitigated prior to the commencement of the activity.

No faculty are available for this activity at this time.

Attendance Verification and Attestation
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An introduction to bioethics for genetic counselors (60 minute lecture) - Kelly Ormond
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• Identify at least 3 reasons why ethics is important in the practice of genetic counseling
• Differentiate morality, ethics and the law
• Summarize the ethical theories of Principalism, Virtue Ethics, and Ethics of Care
• Describe how research ethics and public health ethics may differ from clinical ethics
• Identify ethical resources
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An introduction to bioethics for genetic counselors - Kelly Ormond Evaluation
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The tangled web: A brief history of race and genetics in the US (30 minute lecture) - Lea Davis
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• Contextualize emergence of genetics in an era of white supremacy
• Recognize the difference between genetic ancestry and “race”
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The tangled web: A brief history of race and genetics in the US - Lea Davis Evaluation
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Anthroengineering and Human Centered Design in Genetics/omics (30 minute lecture) - Jennifer Kristin Wagner
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•    To identify federal and state laws protecting individuals in the US from genetic discrimination.
•    To identify federal and state laws offering data privacy protections for individuals in the US.
•    To summarize digital twins and their implications for data justice in precision health.
•    To identify the international human rights to health, science, and privacy and describe their interconnectedness.
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Anthroengineering and Human Centered Design in Genetics/omics - Jennifer Kristin Wagner Evaluation
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Intersections of Bioessentialism and Mental Ableism in Genetics Research (30 minute lecture) - Kayla Retallick-Townsley
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Critically appraise the role of genetic determinism in biological essentialism and identify the impact this has on clinical genetics and public opinion today.
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Intersections of Bioessentialism and Mental Ableism in Genetics Research - Kayla Retallick-Townsley Evaluation
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Combating Bioessentialism in Science and Medicine (30 minute lecture) - Carina Seah
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Be able to describe the concept of biological essentialism, and how its underlying principles contribute to racism, sexism, and eugenics.
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Combating Bioessentialism in Science and Medicine - Carina Seah Evaluation
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Public Health Genomics (30 minute lecture) - Katherine Bonini
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Describe precision public health approaches and discuss measures used to select appropriate precision public health initiatives 
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Public Health Genomics - Katherine Bonini Evaluation
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Public Health Genomics - Part 2 (30 minute lecture) - Debra Duquette
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Detail precision public health applications and examples of implementation programs
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Public Health Genomics - Part 2 - Debra Duquette Evaluation
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Current Laws and Changes in Reproductive Medicine (30 minute lecture) Katherine Lynn Watson
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Summarize the legal landscape for abortion care in the US
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Current Laws and Changes in Reproductive Medicine - Katherine Lynn Watson Evaluation
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The Impact of the Dobbs Decision on IVF and Other Reproductive Technologies (30 minute lecture) - Sonia M. Suter
Learning objective:
After watching this video, listeners should be able to identify the ways in which the Supreme Court decision, Dobbs v. Jackson Woman’s Health Organization, could impact reproductive decision making, particularly in the context of assisted reproductive technologies like IVF, PGT, and prenatal testing (amniocentesis, CVS, etc.)
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The Impact of the Dobbs Decision on IVF and Other Reproductive Technologies - Sonia M. Suter Evaluation
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Navigating Patients' Requests to Transfre Embryos with Monogenic Conditions: Ethical Points to Consider (30 minute lecture) - Ronit Mazzoni
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• Describe and define ethical issues when patients request care that may be considered unethical
• Identify recommendations that clinics can use when facing challenging cases such as these
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Navigating Patients' Requests to Transfre Embryos with Monogenic Conditions: Ethical Points to Consider - Ronit Mazzoni Evaluation
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The ethics of Newborn screening (30 minute lecture) - Aaron Goldenberg
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• Discuss the ethical, legal, and social issues associated with newborn screening programs
•Examine the equity issues associated with expanded newborn screening and follow up care
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The ethics of Newborn screening - Aaron Goldenberg Lecture
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Educational Considerations for Genetic Counselors in the Era of Gene Therapy (30 minute lecture) - Susheela Jayaraman
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• Describe the basic methods utilized in gene therapy
•Examine ethical and educational considerations for genetic counselors regarding gene therapy
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Educational Considerations for Genetic Counselors in the Era of Gene Therapy - Susheela Jayaraman Evaluation
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Precision medicine: Hope, hype, hurdles (30 minute lecture) - Tanya Bardkjian
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•Identify the definition of precision medicine and provide examples
•Examine challenges of developing and trialing precisions medicines for rare disease
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Precision medicine: Hope, hype, hurdles - Tanya Bardkjian Evaluation
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'Managing prognosis' in genetic medicine: from utility to imagination (30 minute lecture) - Rebecca Meuller
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Compare diverse sources of prognostic information that patients may encounter. 
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'Managing prognosis' in genetic medicine: from utility to imagination - Rebecca Meuller Evaluation
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Ethics and Equity in Sickle Cell Research (30 minute lecture) - Marilyn Baffoe-Bonnie
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The primary learning objective is for the audience to understand key ethical considerations in therapeutic research for sickle cell disease through examining empirical research on the lived experiences of sickle cell disease community members (people living with sickle cell disease, families, and clinicians).
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Ethics and Equity in Sickle Cell Research - Marilyn Baffoe-Bonnie Evaluation
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Disability Perspectives from an Advocate within the Autism Community (30 minute lecture) - Heini Natri
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To describe recent advances and ongoing challenges in the inclusion and engagement of diverse stakeholder communities in genetic research on autism and other neurodevelopmental traits.
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Disability Perspectives from an Advocate within the Autism Community - Heini Natri Evaluation
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Disability Perspectives from a Parent of a Profoundly Autistic Son (30 minute lecture) - Amy Lutz
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•Understand the history and goals of the autism parent advocacy movement as compared to the autistic self-advocacy movement
•Understand “partial representation” as a potential solution for resolving these conflicts over representation in the autism community
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Disability Perspectives from a Parent of a Profoundly Autistic Son - Amy Lutz Evaluation
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Genetic testing in the age of new Alzheimer's disease treatments (30 minute lecture) - J. Scott Roberts
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Describe ethical, legal, and social implications of genetic testing for Alzheimer’s disease
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Genetic testing in the age of new Alzheimer's disease treatments - J. Scott Roberts Evaluation
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Duty to disclose genetic risk information to known but unknowing relatives (30 minute lecture) - Shelly Benjaminy
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Duty to disclose genetic risk information to known but unknowing relatives - Shelly Benjaminy Evaluation
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Post Activity Attestation
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In support of improving patient care, Penn Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
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